There always is. And if it draws enough attention, the pressure campaigns and retractions begin, and the gatekeeping by the "prestigious" journals. To quote Dwight Schrute of The Office, "It doesn't count until a liberal looks it up on Wikipedia."
You say "The recommended times are double this ...": are those recommended times for epilepsy treatment? Do those recommendations come with the device?
There seems to be a big discrepancy between recommended times and what is optimal, because even your application of ½ the recommended times were still a bit too much.
BTW, have you been able to stop the meds, ketogenic diet and the use of the VNS?
So, the recommended times I mentioned are what are recommended by the manufacturer... and not specifically for epilepsy, but for use on the head. (Their recommended times are given by where on the body you will be using it.)
And to be clear, we don't know for sure that the agitation was caused by the light therapy. This was not a perfectly clean experiment, there were some other changes that were out of our control, and we have also seen periods of agitation and sleep issues related to meds changes, or sometimes just out of the blue. So there is some uncertainty here.
Also, as with everything (and something doctors almost never mention), everyone is different, and every therapy will impact everyone differently.
We had already been taking the VNS power down, and were planning to start taking some of her meds off - we are now more hopeful that we will be able to get ALL of them off, and yes, hopefully the diet too. But it's a slow process. Changes can be a shock to the system.
Thanks for your answer, Bretigne. I wish you to continue making progress with your daughter's epilepsy, and I hope a lot more research will be done on NIRL treatment for epilepsy.
However, as is common in the pharmaco-medical industry (yes, it is an industry), if there is no money in it they will not allocate money to more research on that.
And yes, that is very true (I don't know if you've seen my podcasts with Kevin McKernan on this topic). I don't mind so much about the industry not giving money for research, I'm more concerned when they try to forcibly suppress treatments that threaten their own interests.
No, I have not seen any of your podcasts, in fact I did not know about you till someone sent me a link to this article.
I agree that the industry not giving money for research, in fact in a way it even better because giving money means leaning on the researchers to "find" certain results which get the cash register ringing.
You are right when you say "I'm more concerned when they try to forcibly suppress treatments that threaten their own interests." That was the point I was trying to make, but failed 😀
There does seem to be an increasing awareness and therefore interest in NIRL therapy, so let's hope it picks up steam in the right way.
I have not completed listening to the podcast but have an observation. While Kevin is undoubtedly an expert in his field, there is 1 issue I take exception to: he believes or claims that viruses exist.
I know this is a tenuous topic but there are a number of people whose work and reasoning I respect and regard highly, such as Drs. Mark Bailey, Andy Kaufman, Tom Cowan, and the late investigative journalist Jon Rappoport, who have been vilified for showing that the whole virus narrative is based on a circular argument that starts on the premise that viruses exist.
Jon was 1 of the early people who showed it to be nonsense when he wrote about the so-called Human Immunodeficiency Virus (HIV).
So, I wonder if Kevin really believes viruses exist or if he is controlled opposition that criticizes the influence and activities of Big Pharma in the context of vaccines, notably Covid-related vaccines, but who keep the notion that viruses exist alive.
What I would give to have one of those! But... I am a targeted (for the work I do for Humanity), elderly, disabled, denied assistance, lost everything, destitute, and homeless lady, sheltering on a friend's floor and using His web on My 15+ year old laptop.
Sadly, no. I’m basically a shut-in, as I’m not supposed to be here and My friend does not want management to see Me. I don’t know anyOne for many, MANY miles around.
I finally finally received my Palm Ultimate. Please tell me, did you use it 3x/day, as recommended by SunPower LED or did you do less? I want to try to avoid agitation of the person I will apply it to.
I did not - I started with less, and that worked for us. I only did it once a day, and for shorter periods than they recommend. For the head, their recommended times were 1 minute red light, 3 minutes near-infrared - I did 30 seconds and one minute. That worked for us. But everyone is different, and if a smaller or less frequent does doesn't work for you, you can always bump it up.
"I have to use it on different parts of her head. I’ve been doing:
660nm for 30 seconds
810nm for one minute
I do this for these lengths of time, on several parts of her head: The base of her skull; left and right temples; forehead; and top of the head. I don’t always manage to get each spot, but always try to do the base of her skull, and sometimes I do some additional spots."
Do you 660nm for 30 secs immediately followed by 810nm for 1 minute at the same spot on her head, or do you 1st do 660nm for each of the various spots and then repeat with 810nm for each?
Furthermore, the manual recommends doing it 3x/day: did/do you follow that schedule?
The 660 for all the spots followed by the 810 makes sense to me.
Now that your daughter's seizures are gone, you are still using the device. That means the treatment will need to be done for the rest of her life, which means the treatment successfully calms down the epilepsy-causing electric discharges, but does not and cannot take away the actual cause triggering those discharges.
Then again, a simple treatment like that "forever" is worthwhile the prevention of seizures. I hope I can achieve the same rate of success with the person at my end.
Well... I don't KNOW that. I'm making assumptions, and acting based on those. But it IS possible that the treatment stopped them forever. I just don't know, and so am being cautious about stopping.
But even if we do have to continue doing this for her for the rest of her life, that option is SO MUCH BETTER than having her on a slew of medications, all of which cause some harm.
Thanks, Bretigne, and thanks for having provided all this useful input. Yes, the meds do have side-effects, always, because at the end of the day they are nothing more than glorified poison.
Once again, all the best with your daughter and may she have a happy, successful life.
Somewhere an MD is shaking his head, mumbling that "no possible mechanism" could do this, and telling himself he's the scientific one.
Yup! ...except in this case, there IS a bunch of research supporting it.
There always is. And if it draws enough attention, the pressure campaigns and retractions begin, and the gatekeeping by the "prestigious" journals. To quote Dwight Schrute of The Office, "It doesn't count until a liberal looks it up on Wikipedia."
I am passing this on to a few folks who need this info!
Thank you!!!
Thank you posting this, very interesting.
You say "The recommended times are double this ...": are those recommended times for epilepsy treatment? Do those recommendations come with the device?
There seems to be a big discrepancy between recommended times and what is optimal, because even your application of ½ the recommended times were still a bit too much.
BTW, have you been able to stop the meds, ketogenic diet and the use of the VNS?
So, the recommended times I mentioned are what are recommended by the manufacturer... and not specifically for epilepsy, but for use on the head. (Their recommended times are given by where on the body you will be using it.)
And to be clear, we don't know for sure that the agitation was caused by the light therapy. This was not a perfectly clean experiment, there were some other changes that were out of our control, and we have also seen periods of agitation and sleep issues related to meds changes, or sometimes just out of the blue. So there is some uncertainty here.
Also, as with everything (and something doctors almost never mention), everyone is different, and every therapy will impact everyone differently.
We had already been taking the VNS power down, and were planning to start taking some of her meds off - we are now more hopeful that we will be able to get ALL of them off, and yes, hopefully the diet too. But it's a slow process. Changes can be a shock to the system.
Thanks for your answer, Bretigne. I wish you to continue making progress with your daughter's epilepsy, and I hope a lot more research will be done on NIRL treatment for epilepsy.
However, as is common in the pharmaco-medical industry (yes, it is an industry), if there is no money in it they will not allocate money to more research on that.
Thank you!
And yes, that is very true (I don't know if you've seen my podcasts with Kevin McKernan on this topic). I don't mind so much about the industry not giving money for research, I'm more concerned when they try to forcibly suppress treatments that threaten their own interests.
No, I have not seen any of your podcasts, in fact I did not know about you till someone sent me a link to this article.
I agree that the industry not giving money for research, in fact in a way it even better because giving money means leaning on the researchers to "find" certain results which get the cash register ringing.
You are right when you say "I'm more concerned when they try to forcibly suppress treatments that threaten their own interests." That was the point I was trying to make, but failed 😀
There does seem to be an increasing awareness and therefore interest in NIRL therapy, so let's hope it picks up steam in the right way.
Yes, there definitely is!
Kevin and I have had several conversations about the world of medical research - you might find this one interesting:
https://www.bretigne.com/p/is-fiat-science-starting-to-crumble?utm_source=publication-search
I have not completed listening to the podcast but have an observation. While Kevin is undoubtedly an expert in his field, there is 1 issue I take exception to: he believes or claims that viruses exist.
I know this is a tenuous topic but there are a number of people whose work and reasoning I respect and regard highly, such as Drs. Mark Bailey, Andy Kaufman, Tom Cowan, and the late investigative journalist Jon Rappoport, who have been vilified for showing that the whole virus narrative is based on a circular argument that starts on the premise that viruses exist.
Jon was 1 of the early people who showed it to be nonsense when he wrote about the so-called Human Immunodeficiency Virus (HIV).
So, I wonder if Kevin really believes viruses exist or if he is controlled opposition that criticizes the influence and activities of Big Pharma in the context of vaccines, notably Covid-related vaccines, but who keep the notion that viruses exist alive.
Wonderful to hear and great to share your experience!
Thank you!
So great to hear!
Thanks!!!
WOW!!!
Please keep us updated on how this develops. Fingers crossed that this is the breakthrough it seems to be!
Thank you! I will!
What I would give to have one of those! But... I am a targeted (for the work I do for Humanity), elderly, disabled, denied assistance, lost everything, destitute, and homeless lady, sheltering on a friend's floor and using His web on My 15+ year old laptop.
Someday!
Do you know of others in your local community who might be interested in going in together on a device?
Sadly, no. I’m basically a shut-in, as I’m not supposed to be here and My friend does not want management to see Me. I don’t know anyOne for many, MANY miles around.
I finally finally received my Palm Ultimate. Please tell me, did you use it 3x/day, as recommended by SunPower LED or did you do less? I want to try to avoid agitation of the person I will apply it to.
I did not - I started with less, and that worked for us. I only did it once a day, and for shorter periods than they recommend. For the head, their recommended times were 1 minute red light, 3 minutes near-infrared - I did 30 seconds and one minute. That worked for us. But everyone is different, and if a smaller or less frequent does doesn't work for you, you can always bump it up.
You stated:
"I have to use it on different parts of her head. I’ve been doing:
660nm for 30 seconds
810nm for one minute
I do this for these lengths of time, on several parts of her head: The base of her skull; left and right temples; forehead; and top of the head. I don’t always manage to get each spot, but always try to do the base of her skull, and sometimes I do some additional spots."
Do you 660nm for 30 secs immediately followed by 810nm for 1 minute at the same spot on her head, or do you 1st do 660nm for each of the various spots and then repeat with 810nm for each?
Furthermore, the manual recommends doing it 3x/day: did/do you follow that schedule?
I've done it both ways, but I find it easier to do all of the spots at 660nm, and then all of them at 810nm.
I did NOT follow that schedule - I just did once a day. And now that her seizures are gone, I'm only doing a few times a week.
Thanks for your quick reply.
The 660 for all the spots followed by the 810 makes sense to me.
Now that your daughter's seizures are gone, you are still using the device. That means the treatment will need to be done for the rest of her life, which means the treatment successfully calms down the epilepsy-causing electric discharges, but does not and cannot take away the actual cause triggering those discharges.
Then again, a simple treatment like that "forever" is worthwhile the prevention of seizures. I hope I can achieve the same rate of success with the person at my end.
Well... I don't KNOW that. I'm making assumptions, and acting based on those. But it IS possible that the treatment stopped them forever. I just don't know, and so am being cautious about stopping.
But even if we do have to continue doing this for her for the rest of her life, that option is SO MUCH BETTER than having her on a slew of medications, all of which cause some harm.
I hope it helps with your person!!!
Thanks, Bretigne, and thanks for having provided all this useful input. Yes, the meds do have side-effects, always, because at the end of the day they are nothing more than glorified poison.
Once again, all the best with your daughter and may she have a happy, successful life.
Thank you!