5 weeks for seizures...yikes. My child had intractable grand mals..about 3 per month that even terrified the paramedics.
Like all parents in this scenario...I started reading everything I could put my hands on about the brain and cranial nerves ( super important: those nerves). Then I could have conversant conversations with neurologists. And I did.
Eventually I saw that I was losing my child cognitively to anti-convulants. Then- she was immediately allergic to Tegretol. At that moment in time I was consulting with a neurologist at Boston Childrens ( I live in Chicago)...he had just seen this same reaction with a young patient in London- and pulled her off asap. For my kid: that meant 1/4 pill per week. Body really sensitive to any changes.
I decided I had to take another route. I turned to homeopathy and cranial sacral (D.O). By age 10 she was off all anti- convulsants. Her last grand mal was at age 18-20. A miracle that defied the medical community take on these types of seizures.
I concluded...for my child...who had a brain scar from her birth injury...that 2 things were happening:
1. at night the brain waves shift. they could not jump over this brain scar..would bundle on one side and create an electrical build up. Bang...night time grand mal seizures.
2. Emotions...don't address them fully and the emotional body builds up such tension that the electrical system overloads. Bang..more night time seizures.
3. The body adapts...then needs more meds. Adapts again...they load on more meds. Because in my experience...they only "sort of know" what they are doing. The brain is a mystery..
I started documenting seizure activity with charts. More meds->. more seizures. Neuro agreed with me and took her off all meds and gave me a letter for the school system at the time.
This was in 1992-95 so hopefully this area of medicine has improved. One would hope.
Every case is different...and I learned all about each type of seizure classification.
I share this for tidbits for you with your kid if it helps.
I have now become a full time energy worker as a result of everything she taught me about how the CNS works when compromised and how to help correct those problems.
Best of luck with this. It's hard stuff. Hard.Stuff.
Exhausting emotionally for sure.
gigi
ps...2 summers ago: @ ER with really serious flu for her. Steel locked doors. WTF?
Attending ER doc furious she was not vaxxxd. ( Do you think I want her dead?!)...I had the records pulled after when I saw them IV'ing antibiotics..to be sure he did not add the CV vaxxx. I would not have put it passed him. And anything we have to sign now gives them blanket permissions. It took 5 phone calls to get the record. I have learned to persist and to advocate.
Nothing more intimidating than a 'Mama Bear' on a warpath.
Wow - that is amazing! We're a homeopathic family - had been doing it since before she was born, and she has always been on it. It *does* make a difference (we notice when her remedy is "running down"), but hasn't resolved seizures. We also used to do cranio-sacral with a DO, which may have helped a little, but he moved away... and then WE moved away! But I'm going to try to find one here.
And yes to getting off of as many meds as possible! There is one that we think helps, and we are slowly (SLOWLY!!!) weaning off some of the others. CBD has made a big difference, as has the ketogenic diet. She's actually - knock wood - doing really well seizure-wise right now, but she's also a teenager and things change...
Yeah, this whole broken system needs to come down.
Try graphing her seizures with the meds and the coming down aspect off a drug. I find it to be informative. My kid's blood pressure took a huge drop on CBD.on the first attempt..so nixed that out of the box. She has a great mind/body connection. I told her she had 5 minutes to bring it back up and she did..
Hormones shifting..yep.
D.O. has been huge for us as has homeopathy. I also joined in and that modality got both of us through lots of stuff. Feldenkrais therapy is also amazing.
It all takes time.
It's just that CV disrupted the apple cart. We will now longer see practitioners who are vaxxxd.
We are about to try Kaastu on her..will see it that makes a difference re blood flow throughout the body.
Yay for you, Mama Bear! It's so discouraging that we have to be our own best advocates (for ourselves and/or our loved ones). Back in 2018, after it was discovered I had a baseball-size brain tumor (thankfully a non-cancerous meningioma), I began researching the F out of it even before searching for a neurosurgeon to remove it, in order to have an educated conversation during the forthcoming consultations. I will say the neurosurgeon I chose (at MassGeneral) was world-class, and the care I received from everyone involved (from pre-op through recovery) was phenomenal. However, I truly believe the great relationship I formed with my neurosurgeon was based upon a mutual respect: his for me for coming to each appointment armed with educated (and challenging) questions; and my respect for him for his willingness to take the time to patiently and transparently answer them all (rare, I know!). My point to this story is to show how critical it is to do our own research so we can properly advocate for ourselves in order to get the best care possible. As a side-note, I'm SO thankful this all happened pre-covid, so I wasn't forced to get the shot in order to be treated!
yes..yes have lots to be grateful for. And I had the same experience with my kid's neuro due to my doing my homework. Always gratifying when that happens with an M.D. ...be well.
"It is nuts that anyone has to get permission from the state in order to practice medicine or to open a hospital."
Yes! How did a coercive civil authority, a monopoly-violence hierarchical social order -- the stupidest and most evil institution humans ever invented -- become the gatekeeper of intelligence, competence, and service to others?
Thank you. It's somehow reaffirming to know that it's not just me. When you're alone in these situations, it's easy to think that everyone else is just fine with it.
I don't think many people have thought about it. Thank you for bringing it to our attention BEFORE many of us are confronted with a situation like this. There are many things we're not fine with when we stop to think about it.
Having been in this exact same scenario with my child..your description of the steel doors could not be more perfect..and I thought the same thing. " who are these people standing between me and my child!?"...god forbid one has to go to the bathroom ....
5 weeks for seizures...yikes. My child had intractable grand mals..about 3 per month that even terrified the paramedics.
Like all parents in this scenario...I started reading everything I could put my hands on about the brain and cranial nerves ( super important: those nerves). Then I could have conversant conversations with neurologists. And I did.
Eventually I saw that I was losing my child cognitively to anti-convulants. Then- she was immediately allergic to Tegretol. At that moment in time I was consulting with a neurologist at Boston Childrens ( I live in Chicago)...he had just seen this same reaction with a young patient in London- and pulled her off asap. For my kid: that meant 1/4 pill per week. Body really sensitive to any changes.
I decided I had to take another route. I turned to homeopathy and cranial sacral (D.O). By age 10 she was off all anti- convulsants. Her last grand mal was at age 18-20. A miracle that defied the medical community take on these types of seizures.
I concluded...for my child...who had a brain scar from her birth injury...that 2 things were happening:
1. at night the brain waves shift. they could not jump over this brain scar..would bundle on one side and create an electrical build up. Bang...night time grand mal seizures.
2. Emotions...don't address them fully and the emotional body builds up such tension that the electrical system overloads. Bang..more night time seizures.
3. The body adapts...then needs more meds. Adapts again...they load on more meds. Because in my experience...they only "sort of know" what they are doing. The brain is a mystery..
I started documenting seizure activity with charts. More meds->. more seizures. Neuro agreed with me and took her off all meds and gave me a letter for the school system at the time.
This was in 1992-95 so hopefully this area of medicine has improved. One would hope.
Every case is different...and I learned all about each type of seizure classification.
I share this for tidbits for you with your kid if it helps.
I have now become a full time energy worker as a result of everything she taught me about how the CNS works when compromised and how to help correct those problems.
Best of luck with this. It's hard stuff. Hard.Stuff.
Exhausting emotionally for sure.
gigi
ps...2 summers ago: @ ER with really serious flu for her. Steel locked doors. WTF?
Attending ER doc furious she was not vaxxxd. ( Do you think I want her dead?!)...I had the records pulled after when I saw them IV'ing antibiotics..to be sure he did not add the CV vaxxx. I would not have put it passed him. And anything we have to sign now gives them blanket permissions. It took 5 phone calls to get the record. I have learned to persist and to advocate.
Nothing more intimidating than a 'Mama Bear' on a warpath.
Wow - that is amazing! We're a homeopathic family - had been doing it since before she was born, and she has always been on it. It *does* make a difference (we notice when her remedy is "running down"), but hasn't resolved seizures. We also used to do cranio-sacral with a DO, which may have helped a little, but he moved away... and then WE moved away! But I'm going to try to find one here.
And yes to getting off of as many meds as possible! There is one that we think helps, and we are slowly (SLOWLY!!!) weaning off some of the others. CBD has made a big difference, as has the ketogenic diet. She's actually - knock wood - doing really well seizure-wise right now, but she's also a teenager and things change...
Yeah, this whole broken system needs to come down.
Try graphing her seizures with the meds and the coming down aspect off a drug. I find it to be informative. My kid's blood pressure took a huge drop on CBD.on the first attempt..so nixed that out of the box. She has a great mind/body connection. I told her she had 5 minutes to bring it back up and she did..
Hormones shifting..yep.
D.O. has been huge for us as has homeopathy. I also joined in and that modality got both of us through lots of stuff. Feldenkrais therapy is also amazing.
It all takes time.
It's just that CV disrupted the apple cart. We will now longer see practitioners who are vaxxxd.
We are about to try Kaastu on her..will see it that makes a difference re blood flow throughout the body.
Yay for you, Mama Bear! It's so discouraging that we have to be our own best advocates (for ourselves and/or our loved ones). Back in 2018, after it was discovered I had a baseball-size brain tumor (thankfully a non-cancerous meningioma), I began researching the F out of it even before searching for a neurosurgeon to remove it, in order to have an educated conversation during the forthcoming consultations. I will say the neurosurgeon I chose (at MassGeneral) was world-class, and the care I received from everyone involved (from pre-op through recovery) was phenomenal. However, I truly believe the great relationship I formed with my neurosurgeon was based upon a mutual respect: his for me for coming to each appointment armed with educated (and challenging) questions; and my respect for him for his willingness to take the time to patiently and transparently answer them all (rare, I know!). My point to this story is to show how critical it is to do our own research so we can properly advocate for ourselves in order to get the best care possible. As a side-note, I'm SO thankful this all happened pre-covid, so I wasn't forced to get the shot in order to be treated!
yes..yes have lots to be grateful for. And I had the same experience with my kid's neuro due to my doing my homework. Always gratifying when that happens with an M.D. ...be well.
"It is nuts that anyone has to get permission from the state in order to practice medicine or to open a hospital."
Yes! How did a coercive civil authority, a monopoly-violence hierarchical social order -- the stupidest and most evil institution humans ever invented -- become the gatekeeper of intelligence, competence, and service to others?
And more importantly: How do we take back OUR authority?
Universal Healthcare is so attractive to some people. I see it as the worst possible way to do health care.
I noticed that I stopped breathing when you wrote about those doors. Yup. Nuts.
Thank you. It's somehow reaffirming to know that it's not just me. When you're alone in these situations, it's easy to think that everyone else is just fine with it.
You are hardly alone...it's just that the majority hand over their personal power in every scenario and have no idea that is what they are doing.
I have been called everything...and I ignore all of it.
This mind control business is real. I saw the Fear vibration when they first laid it out..nice one guys.
I don't think many people have thought about it. Thank you for bringing it to our attention BEFORE many of us are confronted with a situation like this. There are many things we're not fine with when we stop to think about it.
Having been in this exact same scenario with my child..your description of the steel doors could not be more perfect..and I thought the same thing. " who are these people standing between me and my child!?"...god forbid one has to go to the bathroom ....
It's nuts, right?
Nuts!
I’m so so, sorry! Was your child vaccine injured?
No - she's never been vaccinated. She has a rare genetic condition that can result in seizures.
God bless you & her!
Thank you!